Thursday, January 08, 2009

Shadowboxing with HIV

I distinctly remember, when I was nine years old, stumbling across an article in my parents' Newsweek magazine. It was about a recently discovered disease that was infecting gay people, destroying their immune systems, and then leaving them to die with no defenses. If I remember correctly, I later found out that this article was the US mainstream media's first coverage of HIV or AIDS ever. Of course, it was the Reagan administration and the rest of the world was worried about the Cold War. Any other kid probably wouldn't have even bothered reading this article, but I read it very intently. Feverishly. See, I knew already at that age that I was gay. I didn't know yet what it meant or how it would shape my life, but I knew it. And then I read this article, and I made a earth-shattering realization: This is how I'm going to die.

Fast-forward 11 years. At 20 years old, I had my first sexual experience with a guy. It was a hot night during my first summer in DC. I went to my first gay bar with a out-and-proud gay friend. I met a guy, and my friend "got lost" without me suggesting or wanting him to. The guy came on strong, got me drunk, got me drunker, and then walked me home where he invested about 20 minutes sitting on the steps of my O St. NW house with me, trying various techniques to convince me to invite him in. Eventually, I succumbed. I'll spare you the details, but just know that we didn't do anything "risky" but between the time he came in and the time he left the next morning, he gave me reason to doubt his trustworthiness. A few days later, a mutual acquaintance of both of ours happened to stop by the group house I was living in. Soon after her arrival, she asked to speak with me alone in the kitchen, where she disclosed to me that she knew that I'd been with "John" and that she knew that John's ex-boyfriend was positive and had gotten it from John.

Suddenly, I couldn't breathe.

She tried to reassure me, saying that she was sure that I hadn't done anything that would have put me in trouble, but that I should just be careful in the future.

I tried to fight back the initial wave of adrenaline and anxiety that uncontrollably welled up inside me. I told her that, no, we hadn't done anything unsafe, and that I appreciated her telling me. I think I stayed up a bit later that night, watching TV to keep my mind away from what would soon become an all-too familiar pattern: thoughts cycling over and over again around the fact that, true to my earlier prediction, I was going to die of AIDS.

This is how it started. The next three months were filled with sleepless nights, or nights when I'd cry myself to sleep, or 2 AM phone calls to the HIV/AIDS hotline where they'd refuse to tell me the one thing I needed to hear, that I was going to be okay.

The process was always the same: whenever I had a few spare moments of undistracted thought, I'd replay a flip-book version of my experience over in my head, and with a feeling of a spike through my chest, adrenaline-laced anxiety would shoot through me as I imagined all the opportunities where his blood, semen or saliva could have gotten into my blood stream. I honestly couldn't find any, so I started making them up, convinced that, for example, he'd bitten his finger to draw blood and infected me with it.

This thought pattern continued to visit me multiple times per day for months and months. I'd waste 20 minutes at a time staring at the wall frozen by fear and anxiety. I started seeing a therapist. I took transcendental meditation classes. I invented meditative visualizations, picturing microscopic fishes swimming through my veins, gobbling up viruses and cleaning my blood. I started praying to God for help, a God that I'd convinced myself years earlier didn't exist. Nightly prayers were followed by a gentle, unvoiced plea, "Clean my body and heal my soul," repeated over and over until I found the peace of mind to fall asleep.

I got my first HIV test three months after my first and so-far only encounter. Negative. A weight was lifted. Sleep returned effortlessly. I started to thaw as a person. I could again focus on schoolwork and friendships. I was reborn, free and clear.

About a year later, I was in the first few months of my first real relationship. A good friend of mine had turned into the third guy I'd ever been with and subsequently into a boyfriend. Almost as soon as we began getting intimate with each other, the feeling started coming back. I started to convince myself that I was indeed infected with HIV and that I was going to give it to my new boyfriend. It started only as notions at first, but when I got the flu and was home sick for 3 days, I started to get really worried. I knew that I hadn't gotten anything from John, but worried that maybe worrying about having HIV could actually give it to you. Or that maybe it could be spontaneously created through gay sex. My boyfriend tried to attend to my needs, but they were greater than I was prepared to share with him. Finally, I told him, through a veil of tears, what I was so afraid of. I told him the whole story, and his reaction? He told me I had nothing to worry about. He said that we could go get tested together once I'd gotten over the flu. We did: negative and negative. But that's not the end of the story.

I've had several other bouts with HIV anxiety since these experiences, over the span of 10 additional years. Never have I had any rational reason to fear that I was genuinely infected. But my rational brain could not convince my emotional brain that I had nothing to worry about. What was really going on here? Is this fear simply Catholic guilt dressed in HIV's clothing? Or is my emotional brain trying to resolve a deep-seated fear that began back in 1983 when a nine- year-old in his pajamas convinced himself that he was destined to die young of a sexually transmitted virus?

I know I'm not the only one who has problems with anxiety related to HIV. The internet is filled with stories of HIV anxiety and HIV phobia. While the answer to solving the HIV/AIDS crisis is difficult and costly, it appears there's another epidemic that, while more prevalent and spreading more quickly, may be easier to cure: fear and anxiety of HIV-negative people who are convinced that the've contracted the virus. Is this the fault of over-zealous health educators trying to scare kids into having safer sex? Or the human brain's natural tendency to fear the worst possible outcome? Has my personal experience with HIV anxiety caused me irreparable damage, or saved my life?

For anyone out there currently experiencing HIV anxiety, please remember the following:

  • Your partner must be HIV+ to transmit the virus.
  • The virus is present in the blood, semen, vaginal fluid, and breast milk of an HIV-infected individual
  • The virus must enter your bloodstream through a cut or abrasion, or through some mucus membranes.
  • Though HIV infection can occur via oral sex, it's often associated with poor oral hygiene and bleeding gums.
(Please note, while it's true that much HIV anxiety is irrational, you'll give yourself one fewer thing to irrationally worry about if condoms are always used during anal sex with a partner of unknown status. When in doubt*, roll it on.)

If you are worrying about possible HIV infection and none of the above criteria are met, please seek counseling. There's absolutely no reason to go through life riddled with anxiety for no good reason. If you need someone to talk with about our fears and anxiety over HIV, please don't hesitate to email me: michael@thenewgay.net.

* Clarification, 1/8/09, 2:55 PM: Meaning, unless you're monogamous and get tested together...

12 comments:

Anonymous said...

Gosh, even when not in doubt, I'd say roll one on. Of course, I haven't had a boyfriend long-term enough to have the barebacking discussion, but as someone (old) who grew up during the 80s who also got scared shitless by AIDS, I can't imagine having sex without a condom. I don't even know how my straight friends do it on a casual hookup.

Does this make me a bad person for not refusing to watch bareback porn when I encounter it online?

Probably.

BlueSeqPerl said...

Thank you for writing this article, Michael.

I have great concern with younger generations of breeders and gays who don't use condoms. They assume they are clean because their partner "looked" clean. Or think there is some medical procedure or pill to fix their ailment.

I would prefer fear of God (NOT crippling shutdown fear) instead of having no big deal attitude.

I remind my friends with this saying: "Don't be a fool. Wrap your tool."

* Sorry that the message is penetrator-centric.

Anonymous said...

I remember those early days when test results took forever (2-3 weeks?) to come back. I'd was a total wreck waiting for results.

I think the HIV anxiety affects a lot of how we express our sexualities today. Either by becoming completely withdrawn from sex, or going in the opposite direction with this wierd cognitive dissonance about it that eventually leads to infection. Or it expresses itself in an extreme fetisization of barebacking. I wonder if we would be so obsessed with barebacking if AIDS didn't exist.

The 1st or 2nd time I had sex with a man I thought, "I know the rules, I know what to avoid, and I'll stick to that plan." And I did. Then I thought "My mind is now clear of this HIV fear so I'm going to enjoy this cocksucking thing." And I did.

Anonymous said...

I couldn't agree more that the largest part of many people's (and especially my own) anxiety over HIV can be blamed on the 80's. Nothing quite scares a kid shitless like a commercial of dear old Ryan White (or portraying actor kid) in a bed dying with odd-looking bruises all over his body. (I shit you not - it was on TV.)

Back then it wasn't even about sex. We thought it was about sneezes. We even thought it was about spit. And heaven forbid if you could get it from thinking about it because then...we thought we were going to die tomorrow.

As a result of that TV-spot and a lot of bad miseducation, I was absolutely convinced that with every test I would come back positive...simply because I'd made out with a guy! What if my lips had split from being too dry? Or what about that paper cut I got last week? What about sweat?

Despite knowing better now...I still freak out a little bit on the inside when I am about to hear results of any blood test - not just HIV. It's also killed me a little bit inside every time someone I know has told me they've been diagnosed with it because that 80's education still tells me they're going to die soon. I guess I'm just part of that wonderful generation of anxiety-disorder-ridden 30-somethings who freak out first, rationalizes later.

My anxiety is only heightened when I hear of the younger generations who are disregarding protection because they think HIV is like diabetes and can be treated with a simple pill. It feels like Chutes & Ladders sometimes. In so many ways we've made two steps forward, but keep getting sent five steps back.

You'd think I'd be more scared of cancer....

Anonymous said...

Michael,

Good post, 2 things:

1) "Your partner must be HIV+ to transmit the virus."

Clarification: You cannot know serostatus from looking at someone or talking to them. Many HIV+ people look normal and healthy (b/c they are normal). Some HIV+ people will lie about, conceal or withhold their status b/c of very real anti-HIV persecution. Many people who are HIV+ do not conform to the bigoted stereotype: bodybuilder in a gay bar? Think twice.

Here's a thought: If you're really interested in a guy how bout you date instead, establish some trust and find out? If you're out looking for a quick fuck and you accept unprotected sex you're nuts.

2) I unknowingly contracted HIV in the luxurious home of a very wealthy former partner. It doesn't just happen from sweaty, smelly hook-ups guys. Get real about this thing.

3) Can we get the latest information on oral sex? I hear from some it is ok. I am reluctant to believe that.

Anonymous said...

The ignorance about HIV is startling, as well as the indifference.

Oh, as for Reagan's silence, rather than engage his Far Right Wing's calls for quarantine, he may not have spoken about AIDS to silence calls for quarantine, deferring to his health personnel (Fauci & Koop), but his generous funding of AIDS research enabled treatment of HIV within 15 years of the first case.

No fan of Reagan, but for legitimate reasons, not for errors in fact.

Anonymous said...

I heard from a doctor friend that flossing before a date is a bad move, because it creates tiny cuts in your gums. Just making out could lead to contracting HIV. Is this true?

meichler said...

I would guess that any tiny cuts caused by flossing (or brushing for that matter) would be closed and for the most part healed by the time you get done with dinner. It's very hard to contract HIV through your mouth. But you should still be choosy about what you put into it.

As for contracting HIV from kissing, that sounds completely far-fetched, even including the flossing.

Anonymous said...

Can we get the latest information on oral sex? I hear from some it is ok. I am reluctant to believe that.

meichler said...

I think the general consensus on oral sex is that transmission is possible but not likely. Check out this information from the CDC:

http://www.cdc.gov/hiv/resources/qa/qa19.htm

It basically says that there are real-world examples of oral transmission but so few that they can't even calculate the risk factor.

I'd be curious to find out how risky it is. For example, how does it compare with the odds of of getting hit by lightning, or of dying in a car crash. There are some risks that we as a society must find acceptable in order to live. If we compare the risk factor to one of those, we can maybe feel better about it.

BlueSeqPerl said...

As for oral sex risk, it is recommended not to perform oral sex within an hour of oral hygiene practices. Also, if you do not take care of your oral hygiene, you are at higher risk of contracting HIV or other bugs.

Just brush and floss your teeth regularly, but not within an hour of sex.

Anonymous said...

Please remember that in order to not have any doubt you & your monogomous partner need to have had consistent negative results for a year. The virus is most infectious when it is newly-acquired and does not show up in tests during this time - it can take 3-6 months to show a positive result.

Thebody.com is a great (and sometimes entertaining) resource for HIV-related questions.